We got Aaron’s diagnosis. He has been disagosied with Autism Disorder. That’s the official diagnosis. They no longer say “Asperbergers” Or “High Functioning Autism.” I think that is the most frustrating as when you tell people that they don’t know where to place him. At first glance you think he is a happy normal child. It’s only upon close inspection you can note some things that are different.
This is a lot for Eric and me to process. It’s kind of like a cold slap on the face. You get a diagnosis and have all these questions and the team who diagnosed him are like “here’s a binder” to get the ball rolling. Like WTF? I have questions can you at least not answer them then and there?
I still don’t know all that is involved. The binder does lay it out pretty well. But I’d rather have a human tell me. I talked to Tara for a good long while last night as she has worked with ASD kids (Autistic Spectrum Disorder) she had a lot of useful info.
The first step is to get the funding needed and then to start interviewing service providers which will help with his therapy. I don’t know how much he will need or for how long. I still have yet to figure this out.
One thing I know is I don’t want ASD to define his life or who he is. I don’t even know if I will tell him as it may be who he becomes. My hope is by the time he is school aged and entering kindergarten this will be behind us and I don’t have to tell his school so he can start life fresh with no labels or for people to judge him before they know him
I can see how when this happens how other things can take a back burner. My volunteering as fallen behind, I don’t know what this bodes for school. And finding a job is probably out of the question as I will need to take him to therapy several times per week. Hopefully my 1 and soon to be 2 class schedule can be accommodated.